Survey results show unseen burdens for individuals with endometriosis at work and school

Evidation and Myovant Sciences conducted a survey about the lived experiences of people with endometriosis and/or uterine fibroids. The results of that survey show the magnitude of the negative impacts these conditions have on employee and student experiences and quality of life and indicate a need for conversations and accommodations that advance equity for folks with endometriosis and/or uterine fibroids.

“Millions suffer silently from endometriosis and uterine fibroids. Both diseases have excruciating impacts and insidious, yet outsized, effects in everyday life,” said Evidation Co-Founder and CEO Christine Lemke. “We are proud to partner with Myovant to ignite a conversation around how we can better understand and improve the daily health experiences of people with these conditions.”

An estimated 19 million people in the United States have uterine fibroids, while about 7.5 million perimenopausal people suffer from endometriosis. The survey found negative impacts across multiple areas of sufferers’ lives.

For example, 31% of individuals with endometriosis and 18% of people with uterine fibroids have thought about quitting school or work due to the impact of their menstrual symptoms. In comparison, 16% of people without a diagnosis had the same thoughts.

More than a third of individuals diagnosed with endometriosis and/or uterine fibroids missed work every three menstrual cycles (about three months) due to symptoms, while 21% of respondents without a diagnosis had the same experience.

About 41% of people with endometriosis and/or uterine fibroids who have missed work or school because of their menstrual symptoms report missing more than a full workday, considered to be nine or more hours. Ten percent fewer, or 31%, of individuals without a diagnosis report the same issue.

Furthermore, 21% of endometriosis and uterine fibroids sufferers report being unable to complete daily living tasks outside of work during every single menstrual cycle. Twelve percent of people without a diagnosis say they are unable to complete activities of daily living during every menstrual cycle.

This is the second time Evidation and Myovant have partnered to do research on women’s health topics.

The endometriosis/fibroids survey was conducted on the Evidation platform using retrospective wearable data from a self-selected group of about 9,000 people who identified as being assigned female at birth, were between ages 18 and 50, and did not have a diagnosis of polycystic ovarian syndrome, pelvic inflammatory disease, premature ovarian failure, ovarian cancer, or uterine cancer. The survey covered four areas: menstrual history and health, experiences at work or school, experiences with medical providers, and demographics.

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